Image of American Hospice Pioneer, Barbara Karnes, RN Author of "the hospice little blue book" Gone From My Sight, The Dying Experience

Barbara Karnes, RN

American Hospice Pioneer

Barbara Karnes, RN is an American Hospice Pioneer, Award Winning End of Life Educator, Award Winning Nurse, NHPCO Hospice Innovator Award Winner 2018 & International Humanitarian Woman of the Year in 2015.

While at the bedside of hundreds of people during the dying process, Barbara Karnes noticed that each death was following a near identical script. Each person was going through the stages of death in almost the same manner. And most families had the same questions. These realizations led Barbara to sit down and write the "Little Blue Book." The book that changed an industry.

Gone From My Sight has been in print continuously since 1985 and has sold over thirty million copies. Although it is often imitated, it remains the most widely used patient/family handout on signs of approaching death in the United States. It is the original source. With its publication and distribution, Barbara created one of the most important tools in the Hospice movement today: the patient/family educational booklet.

"New Rules for End of Life Care," "Care For The Caregiver," and "This Is How People Die," Barbara's DVD projects, are starting conversations and garnering awards - in this country and around the world. In these films, Barbara compassionately explains the stages of the dying process, talks about behavior changes as they pertain to food, sleep, and withdrawal, and addresses issues relating to the use of narcotics, addiction, and overdosing. She explains how important it is to take care of yourself as a caregiver as well as guidelines to help you do that personally and with your caregiving team.

“We don’t understand that there’s a normal, natural way of dying,” she says. “My goal is to help neutralize the fear that families and significant others bring to the bedside during the end of life experience.”

All resources can be found here:

Displaying stories 1-6 of 6 in total
Westend61/ Getty Images

Looking Back On the Perspective of My 16-Year-Old Self

by Barbara Karnes, RN
Antonio Guillem/ Shutterstock

The Grief Process Following a Tragic Death

by Barbara Karnes, RN
Getty Images
Thriving in the New Normal//

Regaining Trust In This Time of Social Distancing

by Barbara Karnes, RN

Celebrating My Husband’s Birthday While Social Distancing

by Barbara Karnes, RN

Taking Some Of the Fear Out Of Dying Alone

by Barbara Karnes, RN
michaeljung / Shutterstock
First Responders First//

Front Line Workers, Do You Have Self-Care Rituals?

by Barbara Karnes, RN
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