Shannon Burkoth

Narcolepsy and Rare Disease Advocate
I was diagnosed with the misunderstood and rare disease narcolepsy in 2010, and it changed my life. In 2016, I chose to move on from being a victim of my illness to being a survivor and fighter. I now advocate for others. My goal is to help others find and accept their new "normal" in life after a rare diagnosis. I also desire to raise awareness, break down stigmas and influence change in healthcare for the better of all rare patients.
Displaying stories 1-1 of 1 in total

Advocacy has become my drug of choice, and I am addicted

by Shannon Burkoth

Sign up for the Thrive Global newsletter

Will be used in accordance with our privacy policy.

Thrive Global
People look for retreats for themselves, in the country, by the coast, or in the hills . . . There is nowhere that a person can find a more peaceful and trouble-free retreat than in his own mind. . . . So constantly give yourself this retreat, and renew yourself.


We use cookies on our site to give you the best experience possible. By continuing to browse the site, you agree to this use. For more information on how we use cookies, see our Privacy Policy.