Shannon Burkoth

Narcolepsy and Rare Disease Advocate

http://www.shannonthenarcoleptic.com
I was diagnosed with the misunderstood and rare disease narcolepsy in 2010, and it changed my life. In 2016, I chose to move on from being a victim of my illness to being a survivor and fighter. I now advocate for others. My goal is to help others find and accept their new "normal" in life after a rare diagnosis. I also desire to raise awareness, break down stigmas and influence change in healthcare for the better of all rare patients.
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Advocacy has become my drug of choice, and I am addicted

by Shannon Burkoth

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- MARCUS AURELIUS

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